connecting families with resources and with each other

Click the "connect" tab to find out more about our Facebook groups where families affected by heterotaxy can gather to ask questions, share knowledge, and support each other.

 A 5K “race” that you can complete almost any way you would like. In the same way that the bodies of those with heterotaxy have formed in any way possible, we can honor them by participating in any way we possibly can.

We are always working to keep you up to date on the latest research and innovation in surgical techniques and care for the heterotaxy community.

Have you just received a heterotaxy diagnosis for yourself or a loved one?