connecting families with resources and with each other

Click the "connect" tab to find out more about our Facebook groups where families affected by heterotaxy can gather to ask questions, share knowledge, and support each other.

Every year we gather as a community to remember those we've lost. If you would like us to remember your child or family member, please click here to submit their story.

We are always working to keep you up to date on the latest research and innovation in surgical techniques and care for the heterotaxy community.

Have you just received a heterotaxy diagnosis for yourself or a loved one?