Join us in Salt Lake City for a weekend of connection and learning as we welcome some of the foremost experts in diagnosis and treatment of heterotaxy and related disorders.
Registration is now open!
Our 2023 family conference will be held at the DoubleTree Suites in downtown Salt Lake City.
Click here to book your room using the Heterotaxy Connection group rate.
Thomas Saba, MD
As a pediatric pulmonologist, Dr. Saba specializes in asthma, bronchiectasis, and primary ciliary dyskinesia. He has extensive experience with common as well as rare pulmonary conditions with procedural skills, including bronchoscopy, to pursue advanced diagnostic testing when a diagnosis is unclear.
Elle Geddes, MD
Associate Professor of Clinical Medical & Molecular Genetics
Dr. Geddes is a pediatric medical geneticist who specializes in cardiovascular genetics. Her primary focus is improving the care for patients with congenital heart disease using genetics while still providing cost effective evaluations and care.
David Schidlow, MD
Cardiology, Heterotaxy Program Director
Dr. Schidlow is a pediatric cardiology specialist in Boston, Massachusetts, where he is the director of the heterotaxy program, the first and only program in the country who work as a team to care for patients with heterotaxy syndrome. Their goal is to provide a proactive approach to each patient’s care, providing regular screenings and check-ups, rather than waiting for potential problems to arise.
Christopher Broda, MD
Cardiology, Fontan Clinic
Dr. Broda's is a cardiologist at Texas Children's Hospital. His clinical interests involve providing comprehensive care to patients with cardiomyopathies and all forms of congenital heart disease, including those with the most complex hearts. His research interests involve investigations into the outcomes in adult congenital heart disease; heart failure in adult congenital heart disease; and Fontan circulation.
Kelly Kelso, NP
Pediatric Palliative Care
Kelly Kelso worked at Primary Children’s Hospital for over 20 years before joining the Rainbow Kids Palliative Care Team in 2013. She loves working longitudinally with families to develop the goals for their child’s care that is representative of their personal values and beliefs. Kelly lives with her husband and 2 children in SLC. She loves spending times in the outdoors hiking, mountain biking and camping with her family.
Master of Social Work Student
Aimee Lybbert is a current Master of Social Work student at the University of Washington. Her focus of study is the impact that the illness of a child has on the individuals and relationships within the family unit. Professionally, she has worked with medically complex children as a Recreational Therapist and a social worker, but above all, it is her lives experience as a fellow heterotaxy parents that uniquely qualifies her to speak on the challenges facing caregivers and what protective factors can help to combat burnout.