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Heterotaxy Connection

PO Box 585

Draper, Utah

84020

 

© 2018-2019 Heterotaxy Connection, a 501(c)(3) nonprofit. All rights reserved.

2019 FAMILY CONFERENCE

Join us in Salt Lake City for a weekend of connection and learning as we welcome some of the foremost experts in diagnosis and treatment of heterotaxy and related disorders.

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Our keynote speaker, Dr. Pedro Del Nido, is the Chairman of Cardiovascular Surgery at Boston Children's Hospital. His pioneering work in developing techniques for biventricular conversion and left ventricular recruitment has been crucial in establishing new surgical options for children born with heterotaxy syndrome and complex congenital heart defects.

Cardiac Surgery

Pedro del Nido, MD

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Stephanie M. Ware, MD, PhD, is a Professor of Pediatrics and Medical and Molecular Genetics, Vice Chair of Clinical Affairs in Medical and Molecular Genetics, and Program Leader in Cardiovascular Genetics, Herman B Wells Center for Pediatric Research, Indiana University School of Medicine.  Her research laboratory has made significant contributions in the areas of congenital heart defects and cardiomyopathy.

Clinical Genetics

Stephanie Ware, MD

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Dr. Shapiro is a pediatric pulmonologist in Montreal, Canada, who specializes in primary ciliary dyskinesia (PCD); he’s involved with the first and only dedicated PCD clinic in Quebec. 

Pulmonology

Adam Shapiro, MD

In the heterotaxy community, the physical effects of heterotaxy syndrome are often what we focus on while mental health takes a back seat. Dr. Laura Bennett-Murphy, a clinical psychologist at Primary Children's Hospital in Salt Lake City, Utah, is seeking to address that as she works with children who are diagnosed both with physical and mental illnesses.

Clinical Psychology

Laura Bennett-Murphy, PhD

Our 2019 family conference will be held at the DoubleTree Suites in downtown Salt Lake City. Check the registration pages for more information on booking a room with the Heterotaxy Connection group rate.

 

Registration is now open!

Click here for individual registration.

Click here for family registration.

THANK YOU TO OUR SPONSORS!

Silver Level Sponsor:

Facebook

Facebook is the virtual gathering place for our community, a space where families who are facing a rare diagnosis and an uncertain future can connect with others who are walking the same road. It’s a place where we support one another, cheer for victories (no matter how small), and grieve together in loss. They make Heterotaxy Connection possible, and we’re so glad to partner with them for the conference.

Bronze Level Sponsors:

Big Theory Creative

Big Theory Creative is a team of individuals who deliver world class web design and brand development.

Augie's Heart Tribe