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UNEXPECTED PATHS, UNWAVERING SUPPORT.

JOURNEY WITH US.

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Online Support Groups

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RAO GRANT AWARDED

Click connect under the Families / Caregivers tab to find out more about our Facebook groups where families affected by heterotaxy can gather to ask questions, share knowledge, and support each other.

Heterotaxy Connection is thrilled to have been chosen as one of the recipients of the Rare as One grant through the Chan Zuckerberg Foundation. Learn more by checking out our press release.

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Resources

Full conference recordings from September's Facing Heterotaxy Together virtual scientific conference are now available to view and share with your medical teams. Check them out here.

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Have you just received a heterotaxy diagnosis for yourself or a loved one?

Families / Caregivers Click Here

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