The moment the word Heterotaxy is uttered, life is forever changed. Fear and despair can quickly flood other emotions and create loneliness.It's easy to become isolated and hopeless.
While we can't change the journey, Heterotaxy Connection strives to connect families that understand the road you walk. Our families have learned much as they have fought, endured and advocated for what is best for their child and are willing to share these experiences and knowledge.
From regional to global support groups, from awareness day to remembrance day, from welcome bags to a family conference, Heterotaxy Connection is devoted to helping families affected by Heterotaxy. We encourage the collaboration of families and care teams. Our primary mission is to support, educate, and empower families to navigate this journey.
We are an all-volunteer, US based, 501(c)(3) registered non profit organization with regions throughout the country, as well as Canada, the UK, and Australia/New Zealand. Regardless of where you live, we endeavor to help you find the resources you need.
Support. Educate. Empower.