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Every year on May 4th we celebrate Heterotaxy Awareness Day as a community. Since heterotaxy remains a relatively unknown syndrome, we are committed to raising awareness about these rare warriors, and we invite you to join us. We have lots of ways to spread the word about heterotaxy; if you have ideas that aren't here, get in touch with us and let us know so we can add them to the list!

This year, our theme is "Navigating Uncharted Waters." 

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Get Involved!

Looking for ways to help us raise awareness? Look no further!

Do you have a school-aged heterotaxy kid? These activity sheets would make a perfect addition to an explanation of heterotaxy for their classmates!

What better way to celebrate Awareness Day for a syndrome marked by random organ placement than with random acts of kindness? We've put together a little pdf with some cards you can print out and share while you spread both love and awareness to those around you. Just click on the image to the left to download the file!

We want to provide a map for you while you navigate these uncharted waters, so we've prepared some graphics that you can share with your friends and family to help them understand more about this rare syndrome. Just click the icon to download a pdf with five different fact cards.


One of the easiest ways to get the word out is through social media. Post to Twitter, Instagram, or Facebook using our hashtag: #HAD2022. Search for the hashtag and share some posts from other heterotaxy families in order to increase their exposure.

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