HRC3's Mission

• Conduct basic science, translational, clinical and health services research to understand heterotaxy pathophysiology, phenotype and clinical outcomes.

• Foster relationships among various subspecialty clinicians carding for patients with heterotaxy.

• Offer support and guidance for the development of local heterotaxy clinical centers of excellence.

• Develop local and national patient registries to provide a platform for clinical studies.

• Educate patients, families and peers regarding diagnostic tests, medical surveillance and treatments for heterotaxy.

• Standardize language and definitions across various medical specialties.

• Organize international scientific conferences to share research and clinical care progress.

• Facilitate patient participation in industry-sponsored clinical trials.

• Spread awareness of health-care disparities.