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Heterotaxy Research and Clinical Care Collaborative

Heterotaxy Research and Clinical Care Collaborative (HRCCC) is a group of scientists, physicians and health care providers from different medical specialties and institutions focused on conducting heterotaxy research and developing standardized clinical care guidelines.

HRCCC's Mission:

  • Conduct basic science, translational and clinical research to understand heterotaxy pathophysiology, phenotype and clinical outcomes.

  • Offer support and guidance for the development of local heterotaxy clinical centers of excellence across North America.

  • Develop local and national patient registries to provide a platform for clinical studies.

  • Educate patients, families and peers regarding diagnostic tests, medical surveillance and treatments for heterotaxy.

  • Normalize language and definitions across various medical specialties.

  • Organize international scientific conferences to share research and clinical care progress.

  • Facilitate patient participation in industry-sponsored clinical trials.

Find Out More

Interested in being part of the Collaborative? Get in touch to find out how you can be involved.

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