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connecting families with resources and with each other
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Click the "connect" tab to find out more about our Facebook groups where families affected by heterotaxy can gather to ask questions, share knowledge, and support each other.

This year our leadership team is committed to finding ways to foster community and come together at a time when so many of us feel so isolated. Check out our most recent press release for more information.

We are always working to keep you up to date on the latest research and innovation in surgical techniques and care for the heterotaxy community.

Have you just received a heterotaxy diagnosis for yourself or a loved one?