Heterotaxy Connection is committed to connecting with other organizations as we seek to improve care and outcomes for our families.
We are proud to partner with the following groups:
The vision of the Utah Nonprofit Association is to promote strong and vibrant communities for all of Utah by unifying, strengthening and elevating Utah's nonprofits.
The mission of the RDCRN is to advance medical research on rare diseases by providing support for clinical studies and facilitating collaboration, study enrollment and data sharing.
Supporting the rare disease research enterprise as full partners in the RDCRN is the unique and crucial role of CPAG. It is hoped that the success of this relationship between the physician-investigators and the CPAG volunteers will be a model of how such partnerships can lead to a more open and informed research process.
The Genetic Disorders of Mucociliary Clearance Consortium exists to bring together physicians and patients for the sake of Mucociliary Clearance Diseases research.
The National Center for Advancing Translational Sciences (NCATS) at the National Institutes of Health (NIH) was established to transform the translational science process so that new treatments and cures for disease can be delivered to patients faster.